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Madeleine Huynh
Story
Hey everyone!
This year, I am participating in the Bridge to Brisbane 2022 and running 10km in support of my younger brothers, Elijah (15) and Xavier (1), who have Duchenne Muscular Dystrophy (DMD), and those living with this condition across Australia.
DMD is a genetic disorder characterized by progressive muscular degeneration and weakness. There is no cure, but treatment includes pt/ot and meducation. Individuals with DMD generally lose their ability to walk by age 12.
Please help me reach my fundraising goal of $500 by making a secure online donation, which is remitted directly through to Save Our Sons, whose vision is to find a cure for Duchenne and Becker Muscular Dystrophy, and enhance their quality of life.
Thank you so much,
Maddie
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Save Our Sons INC
Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy.
Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy.
Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker muscular dystrophy across Australia.
Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.
To find out more about Save Our Sons Duchenne Foundation, visit www.saveoursons.org.au
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